The Tri-State Trek is a weekend bike ride to benefit ALS research at the ALS Therapy Development Institute (ALS TDI). All proceeds will help find treatments for ALS, also known as Lou Gehrig's disease. We are thrilled to announce that the 2023 Trek will be moving to Northern New England, with a beautiful new route through…
We're living 'Right Here, Right Now' Let's gather to laugh and raise funds for ALS Heroes. Jules has always loved stand-up comedy and as his world shifts with ALS, comedy has provided a way for him to disconnect and lighten the mood in an otherwise dark place. Five local comics come together to connect us…
You can register or donate to our online link. We typically get 400-450 participants! Walnut 5K Run/Walk for ALS Saturday, July 1, 2023 8:00 a.m. 323 S, Main St., Walnut, Illinois Starting line is in front of Bureau Valley Elementary Walnut Campus. Check in at park tent south of the school. All proceeds will be…
The ENCALS meeting 2023 will be hosted in Barcelona, Spain from Wednesday 12 to Friday 14 of July 2023. On Tuesday 11 July there will be satellite meetings of all our sponsors and partners. Local organiser of this meeting is dr. Monica Povedano Panades on behalf of the Bellvitge University Hospital in Barcelona. Registration…
A Manual of Instructions: Maps for a Few Dark Places featuring Dr. Scott Eberle with an introduction by CCALS Founder, Ron Hoffman Sunday, July 16, 2023 1:00 - 2:00 p.m. ET It’s not often in life that you get a few maps for how to traverse the dark places of a serious illness. Scott Eberle, MD,…
Join us for our July ALS Learning Series with Dr. Senda Ajroud-Driss, neurologist and director of the Lois Insolia ALS Clinic at the Les Turner ALS Center at Northwestern Medicine. She’ll discuss updates in ALS clinical research, provide information on trials that are currently recruiting, and review inclusion criteria, with a Q & A to…
NINDS Fundamental Neuroscience Working Group Public Webinar July 27, 2023 | 12:00 - 1:00 PM ET Please click this link to register for the webinar What is the Fundamental Neuroscience Working Group? Find out more here: NANDSC Fundamental Neuroscience Working Group FNWG Public Webinar Agenda (tentative) Introductory Remarks (Walter Koroshetz, 5 min) Committee Charge (Lyn Jakeman,…
Please join us on Thursday, July 27th at 5:00 pm EST (4:00 pm CST/2:00 pm PST) for a webinar about the HEALEY ALS Platform Trial. Merit Cudkowicz, MD, MSc will present updates on the Platform Trial and answer questions from the audience. This week, we will be joined by Dr. Suma Babu of Mass General Hospital to…
Join me, Kristine Copley, our founder, Ron Hoffman, and tech genius Tom Meadows in a groundbreaking presentation about hidden and undocumented functionality in the Apple OS that can specifically benefit people with ALS. Tom’s childhood friend, Steve, was diagnosed with ALS in 2021. Steve's disease progressed and using his phone became more and more difficult.…
Join Dr. Nadia Sethi, the Director of Community Outreach and Engagement at the ALS Therapy Development Institute (ALS TDI), for this new virtual discussion series. These conversations will provide an overview of research at ALS TDI, discuss current clinical trials, and provide space to converse and ask questions about ALS science and research. Through this series,…