Glendale Virtual Support Group Contact Cynthia Marks for information on how to join using Zoom! Facilitator: Cynthia Marks, RT 909-736-5677, cmarks@alsagoldenwest.org
San Francisco and Surrounding Areas Weekly Online Huddle with Taheerah Mindfulness, Connection and Perspective Weekly Huddle. This support group is designed for people living with ALS who are on my caseload as a means to check-in for care management services. We use this virtual platform to check-in weekly for care management services while using mindfulness,…
Berkeley - Loved Ones Support Group Facilitator: Kim Venezia, LMFT 510-569-3631 or kvenezia@alsagoldenwest.org Contact Kim for information on joining the group via Zoom!
Contact Facilitator Dawn White, MPH,CMC,CCP, for information on how to participate: 925-324-5961 dwhite@alsagoldenwest.org
Join us for a HEALEY ALS Platform Trial Q&A Our investigators and study team will be available to answer any and all questions that the you might have about the trial. https://t.co/M1rpdzRw05
Contact facilitator for information on how to participate via Zoom! Facilitator: Kim C. Venezia, LMFT, 510-569-3631 or kvenezia@alsagoldenwest.org
San Francisco and Surrounding Areas Weekly Online Huddle with Taheerah Mindfulness, Connection and Perspective Weekly Huddle. This support group is designed for people living with ALS who are on my caseload as a means to check-in for care management services. We use this virtual platform to check-in weekly for care management services while using mindfulness,…
All-Chapter Community Support Group Check back for information on special speaker! Contact Care Manager Robin Eller for information on how to participate using Zoom! 661-364-1913; reller@alsagoldenwest.org
San Fernando Valley Online Support Group Contact facilitator Emma Karavardanyan, M.A. for information on how to participate via Zoom! 747-282-8177 or ekaravardanyan@alsagoldenwest.org
Santa Rosa - ALS Caregiver Support Group Please Contact Facilitator: Daniel Potapshyn, MA, 707-861-0257 or dpotapshyn@alsagoldenwest.org for details on how to participate!
Turlock Online Support Group Please contact facilitator, Kathleen Kelsey, for information on how to join via Zoom! Kathleen Kelsey, RCP: kkelsey@alsagoldenwest.org; 818-292-4315
Join our upcoming Virtual Event: Making an Impact on ALS Advocacy in Your Community, on Wednesday, January 13, 2021, at 1:30 p.m. (Pacific). Request an invitation and RSVP here.
All Chapter Trach and Vent Online Support Group **NEW** via Zoom! Contact Facilitator: Robin Eller, RT: 661-364-1913 or reller@alsagoldenwest.org for information on how to participate!
Contact Emma for information on how to join virtually using Zoom! Facilitator: Emma Karavardanyan, M.A 747-282-8177 or ekaravardanyan@alsagoldenwest.org
Join I AM ALS as we host the talented activist and artist Mayuri Saxena for a virtual exhibit and discussion of her work. She is generously donating the proceeds of the event to I AM ALS. Beauty in Disability by Mayuri Saxena takes place on Thursday January 14, 2020 at 7 p.m. EST. REGISTER HERE
Murrieta/Palm Springs Online Support Group Contact Mika for information on how to Participate using Zoom!! Facilitator: Mika Flanngan, MSW 951-534-6638, mflanngan@alsagoldenwest.org
Carson Support Group - Now Meeting Online using Zoom! Contact Brandon for information on how to participate! Facilitator: Brandon Whatley, B.S., OTA 818-699-2280 or bwhatley@alsagoldenwest.org
Santa Barbara ALS Support Group Facilitator: Fran Finney, 805-259-8473 ffinney@alsagoldenwest.org ***Call Fran for Info on New Online Meeting!***
Walnut Creek/East Bay - ALS Support Group Contact Dawn for information on how to join virtually using Zoom! Facilitator: Dawn White, MPH,CMC,CCP, 925-324-5961, dwhite@alsagoldenwest.org
Glendale Virtual Support Group Contact Cynthia Marks for information on how to join using Zoom! Facilitator: Cynthia Marks, RT 909-736-5677, cmarks@alsagoldenwest.org
San Francisco and Surrounding Areas Weekly Online Huddle with Taheerah Mindfulness, Connection and Perspective Weekly Huddle. This support group is designed for people living with ALS who are on my caseload as a means to check-in for care management services. We use this virtual platform to check-in weekly for care management services while using mindfulness,…
An online support group specifically for those with a Familial ALS diagnosis Contact facilitator Cynthia Marks for information on how to participate via Zoom! Cynthia Marks, RT: cmarks@alsagoldenwest.org; 909-736-5677
Santa Rosa/North Bay ALS Online Support Group Contact Facilitator: Daniel Potapshyn at 707-861-0257 or dpotapshyn@alsagoldenwest.org for information on how to participate using Zoom!
Please contact facilitator Debbie Joy for information on how to join using Zoom! Debbie Joy: 562-741-8138; djoy@alsagoldenwest.org
Join us for a HEALEY ALS Platform Trial Webinar, "Pridopidine, Mechanism of Action and Science" with representatives from Prilenia, who will discuss Pridopidine, which is Regimen D in the HEALEY ALS Platform Trial. REGISTER HERE
SAN FRANCISCO COUNTY ALS SUPPORT GROUP 1:00-3:00 PM Fourth Friday of each month For information on how to participate via Zoom, contact Facilitator: Taheerah Mujahid, 510-695-2797; tmujahid@alsagoldenwest.org
ASK ME: ALS Research and Care in 2021 Please save the date and join us with your coffee and breakfast on a Saturday morning! This informative event will feature leading ALS researchers and physicians who will explain recent research advancements, answer your important questions, and will give a preview of what to expect in the…
JOHN GILL CENTRAL COAST - ALS SUPPORT GROUP 2:00 - 4:00 PM Contact Julie for information on how to participate using Zoom! Facilitator: Julie Scurich, OTR/L, ATP: (831) 247-9878; jscurich@alsagoldenwest.org
San Francisco and Surrounding Areas Weekly Online Huddle with TaheerahMindfulness, Connection and Perspective Weekly Huddle. This support group is designed for people living with ALS who are on my caseload as a means to check-in for care management services. We use this virtual platform to check-in weekly for care management services while using mindfulness, connection,…
Veteran's ALS Online Support Group This group will support U.S. Veterans, their family, friends and/or caregivers touched by ALS. The focus is keeping individuals connected with their local VA/PVA and educating on all benefits and resources currently available, while also meeting other Veterans and their families for support on their ALS journey. Please contact Robin…
Contact Kathleen for information on how to join online using Zoom! Facilitator: Kathleen Kelsey, RCP 818-292-4315 or Kkelsey@alsagoldenwest.org
All-Hawaii Support Group Please contact Regional Care Manager Cindy for information on how to participate via Zoom! Facilitator: Cindy Hatori, MS chatori@alsagoldenwest.org; 808-219-9036
Bakersfield/Fresno ALS Online upport Group Please contact Robin for information on how to join the meeting using Zoom! Facilitator: Robin Eller, RT: 661-364-1913 or reller@alsagoldenwest.org
Pomona Online Support Group Call Crystal for information on how to participate using Zoom! Facilitator: Crystal Galvan, RRT 747-284-3003, cgalvan@alsagoldenwest.org
Palo Alto – ALS Online Support Group Contact Shannan for information on how to join virtually using Zoom! Facilitator: Shannan Sonnicksen, LCSW, MPH 510-342-9313, ssonnicksen@alsagoldenwest.org
My ALS Communication Passport to Quality Care is a tool for individuals living with ALS and their families. The 12-page Passport document, which is available in hard copy and online, helps nursing, medical staff and caregivers better understand the care needs and preferences of people living with ALS. For the person diagnosed with ALS, this…
San Francisco and Surrounding Areas Weekly Online Huddle with Taheerah Mindfulness, Connection and Perspective Weekly Huddle. This support group is designed for people living with ALS who are on my caseload as a means to check-in for care management services. We use this virtual platform to check-in weekly for care management services while using mindfulness,…
Berkeley - Loved Ones Support Group Facilitator: Kim Venezia, LMFT 510-569-3631 or kvenezia@alsagoldenwest.org Contact Kim for information on joining the group via Zoom!
Contact Facilitator Dawn White, MPH,CMC,CCP, for information on how to participate: 925-324-5961 dwhite@alsagoldenwest.org
On February 4th, we invite you to join special guest and ALS research advocate Ben Stiller, foremost ALS clinicians, leading researchers, and dedicated patient advocates to learn how Jaci and Alex Hermstad inspired the team effort that led to the development of jacifusen - a novel gene therapy for ALS. Those familiar with rare disease know…
Join us for a HEALEY ALS Platform Trial Webinar, "CNM-Au8, Mechanism of Action and Science" with representatives from Clene Nanomedicine, who will discuss CNM-Au8, which is Regimen C in the HEALEY ALS Platform Trial. REGISTER HERE
Meets the First Thursday of each month from 6:30pm-8pm Facilitator(s): Ileane Mindel, RN RSVP: Please email us at supportgroup@lesturnerals.org to RSVP
Glendale Virtual Support Group Contact Cynthia Marks for information on how to join using Zoom! Facilitator: Cynthia Marks, RT 909-736-5677, cmarks@alsagoldenwest.org