Join us on Monday, September 28, 2020 for the Inaugural Driving for Life Colorado Golf Tournament! Proceeds benefit the ALS Therapy Development Institute (ALS TDI) and their mission to end ALS. Driving for Life is one of the longest running fundraising campaigns to support ALS research through the game of golf. Thanks to the support of the golf community, Driving for Life…
San Francisco/San Mateo County Weekly Online Huddle with Taheerah - **NEW** Contact: Taheerah Mujahid @ (510) 695-2676 or tmujahid@alsagoldenwest.org mailto:tmujahid@alsagoldenwest.org for more information!
The Center for Medicare Advocacy has been examining the broad variety of approaches to nurse staffing in nursing homes, and their effectiveness, or lack of effectiveness, in achieving improved staffing levels and competencies. This webinar will discuss some of our findings. Presented by Center for Medicare Advocacy Senior Policy Attorney Toby S. Edelman.
We invite you to join us on Wednesday, September 30 from 5 PM - 6 PM PT for our next ASK ME educational webinar entitled, "When and How to Most Effectively Use Durable Medical Equipment" featuring Julie Muccini, MS, OTR/L, Clinical Specialist, Outpatient Neuro Rehabilitation, Stanford Neuroscience Health Center. Registration link coming soon!
Meets the First Thursday of each month from 6:30pm-8pm Facilitator(s): Ileane Mindel, RN and Easton Stevenson, LCSW RSVP: Please email us at supportgroup@lesturnerals.org to RSVP
Glendale Virtual Support Group Contact Cynthia Marks for information on how to join using Zoom! Facilitator: Cynthia Marks, RT (909) 736-5677, cmarks@alsagoldenwest.org mailto:cmarks@alsagoldenwest.org
San Francisco/San Mateo County Weekly Online Huddle with Taheerah - **NEW** Contact: Taheerah Mujahid @ 510-695-2676 or tmujahid@alsagoldenwest.org for more information!
Berkeley - Loved Ones Support Group Facilitator: Kim Venezia, LMFT 510-569-3631 or kvenezia@alsagoldenwest.org Contact Kim for information on joining the group via Zoom!
We invite you to a special webinar to learn more about California's Proposition 14 - the Californians for Stem Cell Research, Treatments and Cures Initiative of 2020 - to be held on Tuesday, October 6 at 5:30 PM PDT featuring special guest speakers Fred Fisher, MSW, LCSW, President & CEO, The ALS Association Golden West…
Guest Speaker, Dr. Shelena Lalji, MD., F.A.C.O.G. is founder of the Lalji ALS Foundation and dedicated to providing functional medicine approach to people with ALS.
All Chapter Trach and Vent Online Support Group **NEW** via Zoom! Contact Facilitator: Robin Eller, RT: 661-364-1913 or reller@alsagoldenwest.org for information on how to participate!
We will not be meeting in person but please continue to save the date for Saturday, October 10 and join us online! Since we can't bring you to the Walk, we are working on ways to bring the Walk to you! We will update you with details frequently. If you aren't already registered, please sign…
Meets the Second Saturday of each month from 10:30am – 12:30pm Time: 10:30am – 12pm Facilitator(s): Karen Raley Steffens, RN, CHPN, CCM RSVP: Please email us at supportgroup@lesturnerals.org to RSVP
San Francisco/San Mateo County Weekly Online Huddle with Taheerah - **NEW** Contact: Taheerah Mujahid @ 510-695-2676 or tmujahid@alsagoldenwest.org for more information!
San Fernando Valley Online Support Group Contact facilitator Emma Karavardanyan, M.A. for information on how to participate via Zoom! 747-282-8177 or ekaravardanyan@alsagoldenwest.org
Santa Rosa - ALS Caregiver Support Group Please Contact Facilitator: Daniel Potapshyn, MA, 707-861-0257 or dpotapshyn@alsagoldenwest.org for details on how to participate!
Turlock Online Support Group Please contact facilitator, Kathleen Kelsey, for information on how to join via Zoom! Kathleen Kelsey, RCP: kkelsey@alsagoldenwest.org; 818-292-4315
Corte Madera - ALS Caregiver Support Group Please Contact Facilitator: Daniel Potapshyn, MA, 707-861-0257 or dpotapshyn@alsagoldenwest.org for details on how to participate!
Murrieta/Palm Springs Online Support Group Contact Mika for information on how to Participate using Zoom!! Facilitator: Mika Flanngan, MSW 951-534-6638, mflanngan@alsagoldenwest.org
Carson Support Group - Now Meeting Online using Zoom! Contact Brandon for information on how to participate! Facilitator: Brandon Whatley, B.S., OTA 818-699-2280 or bwhatley@alsagoldenwest.org
Central Valley Walk to Defeat ALS http://web.alsa.org/centralvalley The Walk to Defeat ALS is an opportunity to bring hope to people impacted by ALS, to raise funds for treatments and cures, and to come together in support of the ALS community. We will not be meeting in person but please continue to save the date for…
Kern County Walk to Defeat ALS http://web.alsa.org/kerncounty The Walk to Defeat ALS is an opportunity to bring hope to people impacted by ALS, to raise funds for treatments and cures, and to come together in support of the ALS community. We will not be meeting in person but please continue to save the date October…
Walnut Creek/East Bay - ALS Support Group Contact Dawn for information on how to join virtually using Zoom! Facilitator: Dawn White, MPH,CMC,CCP, 925-324-5961, dwhite@alsagoldenwest.org
San Francisco/San Mateo County Weekly Online Huddle with Taheerah - **NEW** Contact: Taheerah Mujahid @ 510-695-2676 or tmujahid@alsagoldenwest.org for more information!
Join the revolution alongside broadway stars Becca Luker and Danny Burstein! Becca and Danny are teaming up with Broadway Cares and I AM ALS to end ALS. On Monday October 19 at 6 p.m. EST the Broadway and ALS communities will rally together for a Write-A-Thon. Together we will write to our US representatives to…
The NYSCF Conference is the leading scientific meeting on translational stem cell research. It annually convenes participants from academia, industry government, non-profits, and patient groups. World-renowned, multi-disciplinary scientists, will present their latest findings about the transformative impact of stem cell research on numerous diseases with a high unmet need.
No cost for pALS. To register, please contact Gwyneth Volkmann, Events Coordinator @ NYSCF: gvolkmann@nyscf.org
An online support group specifically for those with a Familial ALS diagnosis Contact facilitator Cynthia Marks for information on how to participate via Zoom! Cynthia Marks, RT cmarks@alsagoldenwest.org 909-736-5677
Innovation in Trial Design Clinical trial design is evolving in the ALS/MND community and this webinar will look at what the new models are, how they will change the landscape going forward and what are the practical implications for our community. Join representatives of the of the HEALEY, Multi-Arm, Group-sequential trial NETwork to increase efficiency…
Santa Rosa/North Bay ALS Online Support Group Contact Facilitator: Daniel Potapshyn at 707-861-0257 or dpotapshyn@alsagoldenwest.org for information on how to participate using Zoom!
Please join us on Wednesday, October 21st from 2:00-3:00 p.m. for "Long-Term Survival of Participants in the CENTAUR Trial", a webinar with myself and Sabrina Paganoni, MD, Phd, principal investigator of the CENTAUR Trial, to discuss the ongoing results of the CENTAUR Trial.
Pomona Online Support Group Call Crystal for information on how to participate using Zoom! Facilitator: Crystal Galvan, RRT 747-284-3003, cgalvan@alsagoldenwest.org
Palo Alto – ALS Online Support Group Contact Shannan for information on how to join virtually using Zoom! Facilitator: Shannan Sonnicksen, LCSW, MPH 510-342-9313, ssonnicksen@alsagoldenwest.org
SAN FRANCISCO COUNTY ALS SUPPORT GROUP 1:00-3:00 PM Fourth Friday of each month For information on how to participate via Zoom, contact Facilitator: Taheerah Mujahid, 510-695-2797; tmujahid@alsagoldenwest.org
Monterey Bay Walk to Defeat ALS http://web.alsa.org/montereybay The Walk to Defeat ALS is an opportunity to bring hope to people impacted by ALS, to raise funds for treatments and cures, and to come together in support of the ALS community. We will not be meeting in person but please save the date, October 24, and…
The Local Connection Your participation in the Walk to Defeat ALS has a direct impact on people living with ALS and their families at the local level. Through education, support groups, access to care and advocacy, we are working to defeat ALS and provide hope to people living with ALS and their families. We will…
The Local Connection Your participation in the Walk to Defeat ALS has a direct impact on people living with ALS and their families at the local level. Through education, support groups, access to care and advocacy, we are working to defeat ALS and provide hope to people living with ALS and their families. We will…
Veteran's ALS Online Support Group This group will support U.S. Veterans, their family, friends and/or caregivers touched by ALS. The focus is keeping individuals connected with their local VA/PVA and educating on all benefits and resources currently available, while also meeting other Veterans and their families for support on their ALS journey. Please contact Robin…
San Luis Obispo - ALS Online Support Group Please contact Robin for information on how to join the meeting using Zoom! Facilitator: Robin Eller, RT: 661-364-1913 or reller@alsagoldenwest.org
In part 3 of the ALS Town Hall Clinical Trial Series, we will focus on current ALS clinical trials. ALS TDI will be joined by Dr. Sabrina Paganoni from the Healey & AMG Center for ALS at Mass General. Dr. Paganoni will give an overview of the current ALS trials as well as provide additional…
Bakersfield/Fresno ALS Online upport Group Please contact Robin for information on how to join the meeting using Zoom! Facilitator: Robin Eller, RT: 661-364-1913 or reller@alsagoldenwest.org
Please join us for an update on the Platform Trial from Dr. Cudkowicz and Dr. Paganoni with remarks from Troy Green of Tackle ALS and Peter Foss of Answer ALS. Click here to register!