The Penn FTD Center will be hosting a virtual conference, Fighting for the Future: Education and Support for Familial FTD/ALS, on Saturday, February 27, 2021 from 9AM-12PM EST. The team…
Meets the Fourth Saturday of each month from 10:30am-12pm Time: 10:30am – 12pm Facilitator(s): Ileane Mindel, RN, Julie Stowell, RN, CHPN and Elsa Cherwak, PT RSVP: Please email us at…
San Francisco and Surrounding Areas Weekly Online Huddle with Taheerah Mindfulness, Connection and Perspective Weekly Huddle. This support group is designed for people living with ALS who are on my…
TOPIC: Journaling for Inner Healing Join us for a journaling session. Can’t make it? Complete the linked journaling prompts at your leisure and let us know how it went! Caregiver…
Berkeley - Loved Ones Support Group Facilitator: Kim Venezia, LMFT 510-569-3631 or kvenezia@alsagoldenwest.org Contact Kim for information on joining the group via Zoom!
For details -- https://iamals.org/action/join-the-i-am-als-social-hour/
Contact Facilitator Dawn White, MPH,CMC,CCP, for information on how to participate: 925-324-5961 dwhite@alsagoldenwest.org
Join us for a HEALEY ALS Platform Trial Q&A Our investigators and study team will be available to answer any and all questions that the you might have about the…
Glendale Virtual Support Group Contact Cynthia Marks for information on how to join using Zoom! Facilitator: Cynthia Marks, RT 909-736-5677, cmarks@alsagoldenwest.org
San Francisco and Surrounding Areas Weekly Online Huddle with Taheerah Mindfulness, Connection and Perspective Weekly Huddle. This support group is designed for people living with ALS who are on my…
Meredith Gonnason is an experienced creative professional and is currently the Senior Director of Multichannel Production at Synchrony Healthcare Communications. Since finishing her undergrad at Princeton University she has called…
The ALS Association Greater Sacramento Chapter is committed to serving the needs of the ALS community during the COVID-19 crisis. We are offering Virtual Support Group Meetings to ensure those…
Contact Care Manager Robin Eller for information on how to participate using Zoom! 661-364-1913; reller@alsagoldenwest.org
For details -- https://iamals.org/action/join-the-i-am-als-social-hour/
San Fernando Valley Online Support Group Contact facilitator Emma Karavardanyan, M.A. for information on how to participate via Zoom! 747-282-8177 or ekaravardanyan@alsagoldenwest.org
At this event, you will learn how the team at the MassGeneral Institute for Neurodegenerative Disease is working to identify new therapeutic targets for ALS.
Santa Rosa - ALS Caregiver Support Group Please Contact Facilitator: Daniel Potapshyn, MA, 707-861-0257 or dpotapshyn@alsagoldenwest.org for details on how to participate!
Turlock Online Support Group Please contact facilitator, Kathleen Kelsey, for information on how to join via Zoom! Kathleen Kelsey, RCP: kkelsey@alsagoldenwest.org; 818-292-4315
https://iamals.org/action/physicians-perceptions-of-people-with-disability-and-their-health-care/ Having a disability shouldn’t lead to receiving substandard care, symptoms and primary health care concerns overlooked or pain or discomfort ignored. Unfortunately this happens all too often and isn’t…
Corte Madera - ALS Caregiver Support Group Please Contact Facilitator: Daniel Potapshyn, MA, 707-861-0257 or dpotapshyn@alsagoldenwest.org for details on how to participate!
All Chapter Trach and Vent Online Support Group **NEW** via Zoom! Contact Facilitator: Robin Eller, RT: 661-364-1913 or reller@alsagoldenwest.org for information on how to participate!
Contact Emma for information on how to join virtually using Zoom! Facilitator: Emma Karavardanyan, M.A 747-282-8177 or ekaravardanyan@alsagoldenwest.org
Join us for a HEALEY ALS Platform Trial Q&A Our investigators and study team will be available to answer any and all questions that the you might have about the…
Contact facilitator for information on how to participate via Zoom! Facilitator: Kim C. Venezia, LMFT, 510-569-3631 or kvenezia@alsagoldenwest.org
San Francisco and Surrounding Areas Weekly Online Huddle with Taheerah Mindfulness, Connection and Perspective Weekly Huddle. This support group is designed for people living with ALS who are on my…
An online support group specifically for those with a Familial ALS diagnosis Contact facilitator Cynthia Marks for information on how to participate via Zoom! Cynthia Marks, RT: cmarks@alsagoldenwest.org; 909-736-5677
For details -- https://iamals.org/action/join-the-i-am-als-social-hour/
Santa Rosa/North Bay ALS Online Support Group Please Contact Facilitator: Daniel Potapshyn, MA, 707-861-0257 or dpotapshyn@alsagoldenwest.org for details on how to participate!
Please contact facilitator Debbie Joy for information on how to join using Zoom! Debbie Joy: 562-741-8138; djoy@alsagoldenwest.org
TOPIC: Fitness Class Join us for a fitness class and prioritize taking care of yourself by moving your body! Caregiver Club is a bi-monthly virtual meetup of caregivers of people…