Weekly HEALEY ALS Platform Trial Webinar

Virtual

Please join us on Thursday, September 1st at 5:00 pm EST (4:00pm CST/2:00pm PST) for a webinar about biomarkers and the HEALEY ALS Platform Trial. James Berry, MD, MPH will present this week’s…

Free

ALSExpert Talk Series: Nicholas John Maragakis, M.D.

Virtual

Using induced pluripotent stem cells as a platform for understanding ALS disease mechanisms and therapeutic development Dr. Maragakis is the Medical Director of the Johns Hopkins ALS Clinical Trials Unit…

Free

Home Automation for People Living with ALS

Virtual

About the Program With the advancement of technology and home automation systems, tasks that were previously difficult for people living with ALS, such as turning the lights on and off…

Free

Weekly HEALEY ALS Platform Trial Webinar

Virtual

Please join us on Thursday, September 15 at 5:00 pm EST (4:00 pm CST/2:00 pm PST) for a webinar about the HEALEY ALS Platform Trial. Sabrina Paganoni, MD, PhD and Merit Cudkowicz,…

Free

Innovation in Clinical Trial Design

Virtual

Clinical trial design is evolving in the ALS/MND community. This webinar updates us on what the new models are, how they are changing the landscape and what are the practical…

Free

Weekly HEALEY ALS Platform Trial Webinar

Virtual

Please join us on Thursday, September 22 at 5:00 pm EST (4:00 pm CST/2:00 pm PST) for a webinar about the HEALEY ALS Platform Trial. Sabrina Paganoni, MD, Ph.D., and Merit Cudkowicz, MD, MSc…

Free

ALS Town Hall: Meet Your ALS Orgs

Virtual

ALS Town Hall: Meet Your ALS Orgs #2 Introduction to Organizations in the ALS Space Tuesday, September 27, 2022 | 4:00 - 5:30pm EDT You are invited to attend our…

Free

Modulating Systemic Immunity as Treatment for ALS

Virtual

Michael S. McGrath, MD, PhD – Chief Scientific Officer Neuvivo, Professor Department of Medicine, UCSF. Michael S. McGrath, MD, PhD is Professor, Departments of Laboratory Medicine, Pathology, and Medicine at…

Free

C9 CRISPR Conversation with Dr. Claire Clelland

Virtual

The Familial ALS team is excited to host Claire Clelland, PhD, MD, MPhil on Monday October 3rd at 6 p.m. ET/3 p.m. PT. Dr. Clelland is a neurologist specializing in…

Free

ALS Class For First Responders

Virtual

You will learn: The symptoms and early signs of ALS How ALS impacts those living with the disease Best practices for responding to people who cannot speak, walk or have…

Free

Voice Banking

Virtual

October 12 @7:00-8:00 AM (EST New York) In this webinar we will learn more about the new assistive technology of voice banking, how it works, when in the ALS/MND journey…

Free

Weekly HEALEY ALS Platform Trial Webinar

Virtual

Please join us on Thursday, October 20th at 5:00 pm EST (4:00pm CST/2:00pm PST) for a webinar about the HEALEY ALS Platform Trial. Sabrina Paganoni, MD, PhD and Merit Cudkowicz, MD, MSc…

Free

Genetic Counselling

Virtual

Join us in learning more about genetic counselling in ALS/MND. Genetic counsellor Ashley Crook will be providing us with an overview of genetic counselling, different types of genetic testing, and…

Free

ALS TDI Community Conversations

Virtual

Join Dr. Nadia Sethi, the Director of Community Outreach and Engagement at the ALS Therapy Development Institute (ALS TDI), for this new virtual discussion series. These conversations will provide an overview…

Free

Newsflash: Amylyx: RELYVRIO!

Virtual

About the Event Dr. Paganoni is an Associate Professor at Harvard Medical School and works as a physician scientist at the Healey Center for ALS at Massachusetts General Hospital and…

Free

First Annual Global Clinical Trials Update

Virtual

This webinar will provide information on ALS/MND treatments currently in Phase 3 Clinical Trials. We will hear directly about timelines, where the sites are, other programs offered, and who to…

Free

BCI and ALS – Augmented Reality for people with ALS

Virtual

About the Event Dr. Heiman-Patterson is the Director of the Center for Neurodegenerative Disorders and a Professor in the Department of Neurology at the Lewis Katz School of Medicine at…

Free

ALS HIMALAYA Trial

Virtual

Speakers: Dr. Merit Cudkowicz (Sean M. Healey & AMG Center for ALS at MGH) and Dr. Nazem Atassi (Sanofi) The webinar discussion will include the mechanism of action of RIPK1…

Free