About the Event Prior to the establishment of NeuroSense, Alon founded MediCan Consulting, a successful consultancy firm which worked and collaborated with many leading pharmaceutical R&D companies, including Mediwound, Chiasma,…
Charles Brenner PhD at Stanford University, Alfred E Mann Family Foundation Chair in Diabetes and Cancer Metabolism, Charles Brenner is the Alfred E Mann Family Foundation Chair in Diabetes and…
About the Program: Have you ever thought about Voice or Message Banking, but don’t know where to start? Voice and message banking for people living with ALS can be an…
Featured Site: Vanderbilt University Medical Center Please join us on Thursday, August 18th at 5:00 pm EST (4:00pm CST/2:00pm PST) for a webinar about the HEALEY ALS Platform Trial. Sabrina Paganoni, MD,…
On June 23, 2022, the FDA unveiled its Action Plan for Rare Neurodegenerative Diseases including Amyotrophic Lateral Sclerosis (ALS) – a five-year strategy for improving and extending the lives of people living…
Please join us on Thursday, August 25th at 5:00 pm EST (4:00pm CST/2:00pm PST) for a webinar about the HEALEY ALS Platform Trial. Sabrina Paganoni, MD, PhD and Merit Cudkowicz, MD, MSc…
About the Event Homes are where we all live, work, play, and thrive. At Prev.ai, we believe that homes should grow with us, and just as our lives change, so…
Please join us on Thursday, September 1st at 5:00 pm EST (4:00pm CST/2:00pm PST) for a webinar about biomarkers and the HEALEY ALS Platform Trial. James Berry, MD, MPH will present this week’s…
Using induced pluripotent stem cells as a platform for understanding ALS disease mechanisms and therapeutic development Dr. Maragakis is the Medical Director of the Johns Hopkins ALS Clinical Trials Unit…
About the Program With the advancement of technology and home automation systems, tasks that were previously difficult for people living with ALS, such as turning the lights on and off…
Please join us on Thursday, September 15 at 5:00 pm EST (4:00 pm CST/2:00 pm PST) for a webinar about the HEALEY ALS Platform Trial. Sabrina Paganoni, MD, PhD and Merit Cudkowicz,…
Clinical trial design is evolving in the ALS/MND community. This webinar updates us on what the new models are, how they are changing the landscape and what are the practical…
Please join us on Thursday, September 22 at 5:00 pm EST (4:00 pm CST/2:00 pm PST) for a webinar about the HEALEY ALS Platform Trial. Sabrina Paganoni, MD, Ph.D., and Merit Cudkowicz, MD, MSc…
ALS Town Hall: Meet Your ALS Orgs #2 Introduction to Organizations in the ALS Space Tuesday, September 27, 2022 | 4:00 - 5:30pm EDT You are invited to attend our…
Michael S. McGrath, MD, PhD – Chief Scientific Officer Neuvivo, Professor Department of Medicine, UCSF. Michael S. McGrath, MD, PhD is Professor, Departments of Laboratory Medicine, Pathology, and Medicine at…
Weekly Q&A with guest speaker Michael Elliott, MD, FAAN from Swedish Medical Center in WA
The Familial ALS team is excited to host Claire Clelland, PhD, MD, MPhil on Monday October 3rd at 6 p.m. ET/3 p.m. PT. Dr. Clelland is a neurologist specializing in…
You will learn: The symptoms and early signs of ALS How ALS impacts those living with the disease Best practices for responding to people who cannot speak, walk or have…
Presenters: Dr. Merit Cudkowicz (Sean M. Healey & AMG Center for ALS at MGH) and Dr. Shafeeq Ladha (Barrow Neurological Institute) The purpose of this webinar is to provide an…
About the Program: Caregivers undergo changing dynamics and burnout when caring for a loved one. It’s important for others to maintain a more understanding and loving perspective so that they…
Weekly Q&A with guest speaker Catherine Douthwright, PhD, CCRP of UMass Worcester
October 12 @7:00-8:00 AM (EST New York) In this webinar we will learn more about the new assistive technology of voice banking, how it works, when in the ALS/MND journey…
We are excited to host EverythingALS Community Event: Telemedicine and You: Building Proactive, Personalized Care for all People with ALS. - Brian Wallach, Founder of Synapticure - Brook…
Please join us on Thursday, October 20th at 5:00 pm EST (4:00pm CST/2:00pm PST) for a webinar about the HEALEY ALS Platform Trial. Sabrina Paganoni, MD, PhD and Merit Cudkowicz, MD, MSc…
Join us in learning more about genetic counselling in ALS/MND. Genetic counsellor Ashley Crook will be providing us with an overview of genetic counselling, different types of genetic testing, and…
Join Dr. Nadia Sethi, the Director of Community Outreach and Engagement at the ALS Therapy Development Institute (ALS TDI), for this new virtual discussion series. These conversations will provide an overview…