About the Program With the advancement of technology and home automation systems, tasks that were previously difficult for people living with ALS, such as turning the lights on and off in your home, have become much easier. Team Gleason’s mission is to have people living with ALS remain as independent as possible no matter where…
Please join us on Thursday, September 15 at 5:00 pm EST (4:00 pm CST/2:00 pm PST) for a webinar about the HEALEY ALS Platform Trial. Sabrina Paganoni, MD, PhD and Merit Cudkowicz, MD, MSc will present updates on the Platform Trial and answer questions from the audience. In addition, this week will feature a special introduction to…
Clinical trial design is evolving in the ALS/MND community. This webinar updates us on what the new models are, how they are changing the landscape and what are the practical implications for our community. Moderators: Gethin Thomas - Executive Director, Research | Motor Neurone Disease Australia Claire Magnussen, PhD - Program Manager, CAPTURE ALS, McGill…
Dallas/Fort Worth Wednesday, September 21, 2022 | 6:00 - 8:00pm Hilton Garden Inn DFW Airport South, 2001 Valley View Ln, Irving, TX 75061 Presented by Nadia Sethi, DDS, Director of Community Engagement and Outreach at the ALS Therapy Development Institute ALS Unfiltered is a series of live presentations and candid conversations about the science of ALS, drug…
Please join us on Thursday, September 22 at 5:00 pm EST (4:00 pm CST/2:00 pm PST) for a webinar about the HEALEY ALS Platform Trial. Sabrina Paganoni, MD, Ph.D., and Merit Cudkowicz, MD, MSc will present this week’s updates on the HEALEY ALS Platform Trial and answer questions from the audience. We will also be joined by guest speakers Mariah…
ALS Town Hall: Meet Your ALS Orgs #2 Introduction to Organizations in the ALS Space Tuesday, September 27, 2022 | 4:00 - 5:30pm EDT You are invited to attend our second event in the new Town Hall series “Meet Your ALS Orgs”. ALS TDI is thrilled to be partnering with I AM ALS, Answer ALS Research Program, and…
Michael S. McGrath, MD, PhD – Chief Scientific Officer Neuvivo, Professor Department of Medicine, UCSF. Michael S. McGrath, MD, PhD is Professor, Departments of Laboratory Medicine, Pathology, and Medicine at The University of California San Francisco (UCSF). He has authored over 200 scientific articles in the fields of AIDS, cancer and neurological disease since joining…
Weekly Q&A with guest speaker Michael Elliott, MD, FAAN from Swedish Medical Center in WA
The Familial ALS team is excited to host Claire Clelland, PhD, MD, MPhil on Monday October 3rd at 6 p.m. ET/3 p.m. PT. Dr. Clelland is a neurologist specializing in the care of patients with dementia, including C9 carriers. Her lab at UCSF is developing novel CRISPR gene editing approaches for dementia and ALS, starting…
You will learn: The symptoms and early signs of ALS How ALS impacts those living with the disease Best practices for responding to people who cannot speak, walk or have another disability Much more through the question and answer section Jinsy Andrews, MD, MSc, FAAN: Director of Neuromuscular Clinical Trials at Columbia University in the City…
Presenters: Dr. Merit Cudkowicz (Sean M. Healey & AMG Center for ALS at MGH) and Dr. Shafeeq Ladha (Barrow Neurological Institute) The purpose of this webinar is to provide an overview of how SLS-005 (trehalose) may help to slow ALS and illustrate what potential participants can expect when enrolling in Regimen E of the Healey…
About the Program: Caregivers undergo changing dynamics and burnout when caring for a loved one. It’s important for others to maintain a more understanding and loving perspective so that they can cope effectively. Please join us on Thursday, October 6 from 12-1 p.m. (CT) for this month’s ALS Learning Series, “Navigating the Challenges of Caregiving…
Weekly Q&A with guest speaker Catherine Douthwright, PhD, CCRP of UMass Worcester
October 12 @7:00-8:00 AM (EST New York) In this webinar we will learn more about the new assistive technology of voice banking, how it works, when in the ALS/MND journey should it be done, and how to get access. Moderator: Sara Feldman – ALS Hope Foundation Panel: Alicia Gibb – MND New South Wales &…
We are excited to host EverythingALS Community Event: Telemedicine and You: Building Proactive, Personalized Care for all People with ALS. - Brian Wallach, Founder of Synapticure - Brook Croke, MPH, Certified genetics counselor in the Department of Pediatrics at SIU School of Medicine - Danielle Geraldi Samara , MD , Neurologist - Dr. Eric Anderson…
Please join us on Thursday, October 20th at 5:00 pm EST (4:00pm CST/2:00pm PST) for a webinar about the HEALEY ALS Platform Trial. Sabrina Paganoni, MD, PhD and Merit Cudkowicz, MD, MSc will present updates on the Platform Trial and answer questions from the audience. In addition, this week will feature a special introduction to Site Investigator…
Join us in learning more about genetic counselling in ALS/MND. Genetic counsellor Ashley Crook will be providing us with an overview of genetic counselling, different types of genetic testing, and genetic counselling considerations before testing.
Join Dr. Nadia Sethi, the Director of Community Outreach and Engagement at the ALS Therapy Development Institute (ALS TDI), for this new virtual discussion series. These conversations will provide an overview of research at ALS TDI, discuss current clinical trials, and provide space to converse and ask questions about ALS science and research. Through this series,…
ALS Strategic Planning Workshop We would like to remind and encourage you to register for the virtual ALS Strategic Planning Workshop occurring this week on Wednesday October 26th and Thursday October 27th. A draft strategic plan of the highest priorities for research that will lead the way to the discovery of effective interventions for the diagnosis, treatment, management, prevention, or cure of…
About the Event Dr. Paganoni is an Associate Professor at Harvard Medical School and works as a physician scientist at the Healey Center for ALS at Massachusetts General Hospital and at Spaulding Rehabilitation Hospital.Her research focuses on clinical trials and therapy development for ALS. She has served as PI of several ALS clinical trials and…
21st Annual NEALS Meeting November 1 - 3, 2022 The 2022 NEALS Meeting will be held in November in a hybrid format – both virtually and at the Opal Sands Resort in Clearwater Beach, Florida! 2022 Abstract Submission Abstract submission for the 2022 Annual NEALS Meeting is now closed. Two abstract awards will be given…
This webinar will provide information on ALS/MND treatments currently in Phase 3 Clinical Trials. We will hear directly about timelines, where the sites are, other programs offered, and who to contact if more information is needed. Moderated by Gethin Thomas, Executive Director, Research - MND Australia, hear from AB Science, Amylyx, Biogen, Clene Nanomedicine, Ferrer,…
ALS brings with it a lot of uncertainty and loss emotionally and physically. It can feel like your body is failing you, and lead to mental and emotional struggles related to what it means to live with ALS, and how to find meaning while living with it. Join us for a conversation on November 8th…
About the Event Dr. Heiman-Patterson is the Director of the Center for Neurodegenerative Disorders and a Professor in the Department of Neurology at the Lewis Katz School of Medicine at Temple University. She directs the MDA/ALS Center of Hope, including the clinical and laboratory research programs. Her career has always been dedicated to research in neuromuscular…
Speakers: Dr. Merit Cudkowicz (Sean M. Healey & AMG Center for ALS at MGH) and Dr. Nazem Atassi (Sanofi) The webinar discussion will include the mechanism of action of RIPK1 inhibition, efficacy in animal models, results from Phase 1 first in human studies, and Phase 2 study design and update on enrollment.