Technology for ALS Living and Voice Banking

Virtual

Louisiana native Michael Holoway is a perfect addition to the Team Gleason Technology program. His experience in leadership, management and customer service is incredibly valuable for Team Gleason’s mission, but…

Free

Weekly HEALEY ALS Platform Trial Webinar

Virtual

Please join us on Thursday, July 7th at 5:00 pm EST (4:00pm CST/2:00pm PST) for a webinar about biomarkers and the HEALEY ALS Platform Trial. Sabrina Paganoni, MD, PhD and Merit Cudkowicz, MD,…

Free

Canceled ALS at all ages

Virtual

Time & Location Jul 20, 4:00 PM Zoom call About the Event EverythingALS is honored to announce our future guest; Leah Stavenhagen, Sunny Brous and Macey Hoaglund, who all have…

Free

Weekly HEALEY ALS Platform Trial Webinar

Virtual

Please join us on Thursday, July 21st at 5:00 pm EST (4:00pm CST/2:00pm PST) for our weekly Q&A webinar about the HEALEY ALS Platform Trial. Sabrina Paganoni, MD, PhD and Merit Cudkowicz, MD,…

Free

Genes in ALS

Virtual

Matthew Harms, MD Associate Professor of Neurology at Columbia University Thursday, July 28, 2022 1:00 - 2:00 PM EDT This webinar will provide an approachable overview of the major genes…

Free

Weekly HEALEY ALS Platform Trial Webinar

Virtual

Please join us on Thursday, July 28th at 5:00 pm EST (4:00pm CST/2:00pm PST) for a webinar about the HEALEY ALS Platform Trial. Sabrina Paganoni, MD, PhD and Merit Cudkowicz, MD, MSc…

Free

Boosting Resiliency with Nicotinamide Riboside

Virtual

Charles Brenner PhD at Stanford University, Alfred E Mann Family Foundation Chair in Diabetes and Cancer Metabolism, Charles Brenner is the Alfred E Mann Family Foundation Chair in Diabetes and…

Free

Canceled Weekly HEALEY ALS Platform Trial Webinar

Virtual

Featured Site: Vanderbilt University Medical Center Please join us on Thursday, August 18th at 5:00 pm EST (4:00pm CST/2:00pm PST) for a webinar about the HEALEY ALS Platform Trial. Sabrina Paganoni, MD,…

ALS TDI Community Conversations

Virtual

Join the Conversation on August 23 Overview of research at ALS TDI and current clinical trials. Tuesday, August 23, 2022 | 5:00 to 6:00pm EDT ET Led by Dr. Nadia…

Free

Stakeholder Call: ACT for ALS Update

Virtual

On June 23, 2022, the FDA unveiled its Action Plan for Rare Neurodegenerative Diseases including Amyotrophic Lateral Sclerosis (ALS) – a five-year strategy for improving and extending the lives of people living…

Free

Weekly HEALEY ALS Platform Trial Webinar

Virtual

Please join us on Thursday, August 25th at 5:00 pm EST (4:00pm CST/2:00pm PST) for a webinar about the HEALEY ALS Platform Trial. Sabrina Paganoni, MD, PhD and Merit Cudkowicz, MD, MSc…

Free

Weekly HEALEY ALS Platform Trial Webinar

Virtual

Please join us on Thursday, September 1st at 5:00 pm EST (4:00pm CST/2:00pm PST) for a webinar about biomarkers and the HEALEY ALS Platform Trial. James Berry, MD, MPH will present this week’s…

Free

ALSExpert Talk Series: Nicholas John Maragakis, M.D.

Virtual

Using induced pluripotent stem cells as a platform for understanding ALS disease mechanisms and therapeutic development Dr. Maragakis is the Medical Director of the Johns Hopkins ALS Clinical Trials Unit…

Free

Home Automation for People Living with ALS

Virtual

About the Program With the advancement of technology and home automation systems, tasks that were previously difficult for people living with ALS, such as turning the lights on and off…

Free

Weekly HEALEY ALS Platform Trial Webinar

Virtual

Please join us on Thursday, September 15 at 5:00 pm EST (4:00 pm CST/2:00 pm PST) for a webinar about the HEALEY ALS Platform Trial. Sabrina Paganoni, MD, PhD and Merit Cudkowicz,…

Free

Innovation in Clinical Trial Design

Virtual

Clinical trial design is evolving in the ALS/MND community. This webinar updates us on what the new models are, how they are changing the landscape and what are the practical…

Free

ALS Unfiltered

Dallas/Fort Worth Wednesday, September 21, 2022 | 6:00 - 8:00pm Hilton Garden Inn DFW Airport South, 2001 Valley View Ln, Irving, TX 75061 Presented by Nadia Sethi, DDS, Director of Community…

Free

Weekly HEALEY ALS Platform Trial Webinar

Virtual

Please join us on Thursday, September 22 at 5:00 pm EST (4:00 pm CST/2:00 pm PST) for a webinar about the HEALEY ALS Platform Trial. Sabrina Paganoni, MD, Ph.D., and Merit Cudkowicz, MD, MSc…

Free

ALS Town Hall: Meet Your ALS Orgs

Virtual

ALS Town Hall: Meet Your ALS Orgs #2 Introduction to Organizations in the ALS Space Tuesday, September 27, 2022 | 4:00 - 5:30pm EDT You are invited to attend our…

Free

Modulating Systemic Immunity as Treatment for ALS

Virtual

Michael S. McGrath, MD, PhD – Chief Scientific Officer Neuvivo, Professor Department of Medicine, UCSF. Michael S. McGrath, MD, PhD is Professor, Departments of Laboratory Medicine, Pathology, and Medicine at…

Free