This presentation will explore the role Medicare does, and could, play in supporting older and disabled beneficiaries and their caregivers. Presented by Center for Medicare Advocacy Executive Director and Associate Director David Lipschutz.
The Center for Medicare Advocacy has been examining the broad variety of approaches to nurse staffing in nursing homes, and their effectiveness, or lack of effectiveness, in achieving improved staffing levels and competencies. This webinar will discuss some of our findings. Presented by Center for Medicare Advocacy Senior Policy Attorney Toby S. Edelman.
https://us02web.zoom.us/webinar/register/WN_bluSsiQLQcOz7mZbuxGzvA
Join the revolution alongside broadway stars Becca Luker and Danny Burstein! Becca and Danny are teaming up with Broadway Cares and I AM ALS to end ALS. On Monday October 19 at 6 p.m. EST the Broadway and ALS communities will rally together for a Write-A-Thon. Together we will write to our US representatives to…
Bryan tried to teach each of us to live in the moment and make memories with the ones we love. We will honor his wish with a “Bwayne” celebration. Wednesday, October 28th. Stop by between 5pm-7pm at 103 Glen Haven Court Lebanon, TN. We will be outside in a tent so dress accordingly. Masks and…
A different kind of advocacy conference and Hill Day! Tuesday, February 9, 2021 - A day of idea-sharing and brainstorming. Wednesday, February 10, 2021 - Your Hill Day to talk about issues that are important to you. Everyone is welcome. Seating is limited. Online access will be available. Online registration will open late in 2020.
There will be virtual access to this different kind of advocacy gathering. Online registration will open before the end of 2020.
From Center for Medicare Advocacy - Practical points as well as advocacy topics.
At Major League Baseball parks throughout the US. Be there or be square.
Major League Baseball is officially honoring Lou Gehrig Day at ballparks across the country on June 2 and 3. To commemorate the occasion, please join us for a very special discussion on Wednesday, June 2 from 12:00 PM - 1:00 PM CDT with two longtime friends of the Les Turner ALS Foundation: Jonathan Eig, acclaimed…
On September 20-27, 2021—ALS Youth Action Week—kids, teenagers, and young adults will show the world that ALS must be cured. By holding a game competition, hosting an iced tea stand, starting a corn hole tournament, or educating others, you will reveal that ALS is not an incurable disease - it is an underfunded one. Please go…
Notre Dame Neuroscience Club sponsors an annual walk. Proceeds will benefit families dealing with ALS in St Joseph County via the Indiana ALSA Chapter. Please join us for a beautiful walk on campus with a stop at the Grotto to remember all lost to ALS. Walk steps off from Jordan Science Hall at 10am.
What’s an AdCom? It stands for an Advisory Committee. And on March 30, 2022, an Advisory Committee will meet to discuss Amylyx Pharmaceuticals treatment AMX0035. This is a crucial step in AMX0035’s path toward approval in the FDA. Together as a community we want to be there with you to watch it happen! Join us…
Event by Michelle Lorenz and No More Excuses! ALS Watch Dog Group Join April 4th at 7 pm ET, 4 pm PT The AACT for ALS was signed into law in by President Biden on December 2021. The bill was among the most cosponsored bills in the last half century. Congress just appropriated money for FY 2022. But…
https://www.regulations.gov/commenton/FDA-2022-N-1436-0001
ALS Town Hall: Meet Your ALS Orgs #2 Introduction to Organizations in the ALS Space Tuesday, September 27, 2022 | 4:00 - 5:30pm EDT You are invited to attend our second event in the new Town Hall series “Meet Your ALS Orgs”. ALS TDI is thrilled to be partnering with I AM ALS, Answer ALS Research Program, and…
Yes, your stories are compelling. So are your ideas. We are more than our stories. Please join us in person or virtually on February 14 and 15, 2023, for a day of idea-sharing followed by a day of advocacy action. Welcome to the sixth annual MTOS!
